May 20, 2017

Looking back

            So many doctors and so many tests.  I got blood drawn, MRI’s, MRA’s, CT Scans, EEG, EKG, EMG’s and two biopsies of my right leg.  So many tests and most only said what I didn’t have.  I got to telling people that I was in good shape for the shape I was in.

            Finally came the pronouncement that I had Mixed Connective Tissue Disease.  This was a good case for disability so I applied and was placed on Medical Leave.  I had hoped to make it till Easter but the Cabinet felt it would be better if I went on medical leave at the end of March.

            That turned out to be a good plan since I ended up in the hospital two days before the time ended. Driving to see my counselor I passed out from the pain and could not move anything but my head and right hand.

Friday May 19

            I woke early with a lot of pain, especially in my eyes.  Couldn’t do my usual watching the Bible on video or even read so listened to Joel and part of Amos.  After using tea bags eyes still hurt until after lunch. 

            Last night started Lamotrigine taking 25MG at night and will take that amount for a week and then increase it each week 25MG.  So now I will see if it works and look out for side effects.

            The pain today was very bad at times.  For weeks my toes have felt like great weights.  They weigh down my feet and make it hard to walk.  It is hard to understand how my feet can be numb to real pain but feel this nerve pain so terribly.  But that seem to be my lot at this time.  At times I wonder if there were to be a real pain heralding a real problem I would even know.

            Bonnie and her sister Melanie talked with Mom Perkins about the plans for her care.  Everyone seems on the same page and are getting ready for when we will be able to come home.